Claire Altman Heine Foundation, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

CAHF

Year Established:

2009

Mission Statement:

While other organizations are working hard to find a treatment and/or cure, the Claire Altman Heine Foundation mission is to use its funding to identify carriers of spinal muscular atrophy (SMA), support population-based SMA carrier testing, raise awareness of SMA and educate the public and medical communities about SMA.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Spinal Muscular Atrophy (SMA)

Organizational Contact Information

Title:

Executive Director

Degree:

First Name:

Deborah

Last Name:

Heine

Address:

1112 Montana Avenue Suite 372

Santa Monica, CA, 90403

Phone:

+1 310 260 3262

Fax:

+1 310 393 7154

Email:

deb@preventsma.org

Website Address:

http://www.preventsma.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Families of affected individuals

The public

Legislators

Media

Students

Other

Range of services include:

Medical referrals

Other

Genetic testing

Awareness programs

Genetic information

Genetic counseling

Advocacy

Other

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Journal articles on condition

Pamphlet(s)

Booklet(s)

Website

Other

Conferences/workshops for:

Other

Financial assistance for:

Other