Citizens for Quality Sickle Cell Care, Inc.

General Organizational Information

Organization Name:

Year Established:

2009

Mission Statement:

To ensure the availability and accessibility of quality and comprehensive medical care and support services for children and adults in Northern Connecticut with Sickle Cell Disease and related di

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Organizational Contact Information

First Name:

Olusola

Last Name:

Odesina

Address:

104 Miriam Rd

New Britain, CT, 6053

Phone:

+1 860 229 3194

Fax:

+1 860 827 0387

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

English

Spanish

Range of services include:

Referrals to local chapter or group

Professional counseling

Medical referrals

Peer support

Referrals for non-medical services

Non-medical services

Peer-to-peer counseling

Awareness programs

Summer camp

Speakers

Genetic counseling

Training

Advocacy

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Slides

Journal articles on condition

Pamphlet(s)

Booklet(s)

Research updates

Resource guide

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals