Chromosome Disorder Outreach, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

CDO

Year Established:

1992

Brochure:

CDObrochure.pdf

Type of organization:

Condition(s)-specific organization

Mission Statement:

Our mission is to provide support to parents of children born with rare chromosome disorders, to gather & disseminate information, & to promote research & a positive community understanding of these disorders.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Chromosome Deletions

Chromosome Duplications

Chromosome Inversions

Chromosome Translocations

Chromosome Anomalies

Chromosome Mosaicism

Organizational Contact Information

Title:

President

First Name:

Linda

Last Name:

Sorg

Address:

PO Box 724

Boca Raton, FL, 33429-0724

United States

See map: Google Maps

Phone:

+1 561 395 4252

Fax:

+1 561 395 4252

Email:

info@chromodisorder.org

Website Address:

http://www.chromodisorder.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Parents

Fathers

Mothers

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Genetic information

Telephone helpline

E-mail list

Educational materials include:

Pamphlet(s)

Website

Newsletter

Journal articles on condition

Research updates

Lending library

Research Management:

Linking researchers and families