Chordoma Foundation

General Organizational Information

Organization Name:

Chordoma Foundation

Year Established:

2007

Type of organization:

Condition(s)-specific organization

Mission Statement:

Our mission is to improve the lives of patients with chordoma by rapidly delivering effective treatments, and ultimately a cure.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Chordoma

Organizational Contact Information

Title:

Executive Director

First Name:

Josh

Last Name:

Sommer

Address:

PO Box 2127

Durham, NC, 27702

United States

See map: Google Maps

Phone:

+1 919 809 6779

Email:

josh@chordoma.org

Website Address:

http://www.chordoma.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Media

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Peer-to-peer counseling

Medical referrals

Referrals for non-medical services

Non-medical services

Advocacy

Speakers

E-mail list

Educational materials include:

Website

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Research Management:

Linking researchers and families

Participant recruitment

Initiating and conducting research

Awarding research grants

Providing information about clinical trials

No Revisions:

I have reviewed my listing and there are no updates to be made at this time.