Children's Tumor Foundation

General Organizational Information

Organization Name:

Organization Acronym:

CTF

Year Established:

1978

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Children's Tumor Foundation is dedicated to improving the health and well being of individuals and families affected by neurofibromatoses (NF).

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Neurofibromatosis 1 (NF1)

Neurofibromatosis 2 (NF2)

Organizational Contact Information

Title:

President

First Name:

John

Middle Initial:

Last Name:

Risner

Address:

95 Pine Street, 16th Floor

New York, NY, 10005

Phone:

+1 212 344 6633

Fax:

+1 212 747 0004

Toll Free Number:

+1 800 323 7938

Email:

info@ctf.org

Website Address:

http://www.ctf.org

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Medical referrals

Clinical or treatment centers

Political action

Advocacy

E-mail list

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Research updates

Video(s)/Movie(s)

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals