Children's PKU Network

General Organizational Information
Organization Name: 
Children's PKU Network
Organization Acronym: 
CPN
Year Established: 
1991
Mission Statement: 
CPN is a non-profit organization dedicated to maintaining an agenda of public awareness, education and direct assistance through a variety of programs, to help people with PKU and other metabolic disorders reach their full potential.
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Phenylketonuria (PKU)
Organizational Contact Information
Title: 
Executive Director
First Name: 
Cindy
Last Name: 
Neptune
Address: 
3790 Via De La Valle Suite 120
Del Mar, CA, 92014
Phone: 
+1 858 509 0767
Fax: 
+1 858 509 0768
Toll Free Number: 
+1 800 377 6677
Email: 
pkunetwork@aol.com
Website Address: 
http://www.pkunetwork.org
Resources and Services Provided
Information provided for: 
Other
Range of services include: 
Referrals to local chapter or group
Referrals for non-medical services
Crisis intervention
Other
Other
Educational materials include: 
Fact sheet(s)
Video(s)/Movie(s)
Pamphlet(s)
Booklet(s)
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Scholarships
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org