Children's Sickle Cell Foundation

General Organizational Information

Organization Name:

Organization Acronym:

CSCF

Branch/Affiliation:

SCDAA

Year Established:

2002

Type of organization:

Condition(s)-specific organization

Mission Statement:

The mission of the Children’s Sickle Cell Foundation, Inc. (CSCF) is to provide social, educational and economic support for children with sickle cell disease (SCD) and their families. Our commitment to sickle cell disease and sickle trait outreach, and support for sickle cell disease research are natural extensions of this mission.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Sickle cell anemia

Sickle Cell Disease

Sickle Cell Trait

Organizational Contact Information

Prefix:

Ms.

Title:

Executive Director

Degree:

First Name:

Andrea

Last Name:

Williams

Address:

226 Paul Street Suite 102

Pittsburgh, PA, 15211

United States

See map: Google Maps

Phone:

+1 4124882723

Fax:

+1 4124882724

Email:

support@cscfkids.org

Website Address:

http://www.cscfkids.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to research studies

Peer Support

Peer-to-peer counseling

Medical referrals

Genetic testing

Referrals for non-medical services

Non-medical services

Financial referrals

Awareness Programs

Advocacy

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Research updates

Video(s)/Movie(s)

Financial assistance for:

Transportation

Disease Characterization:

Organization has access to patient medical records

Research Management:

Awarding research grants

Major research collaborators :

UPMC