Charcot-Marie-Tooth Association

General Organizational Information

Organization Name:

Year Established:

1983

Type of organization:

Condition(s)-specific organization

Mission Statement:

To generate the resources to find a cure, to create awareness and to improve the quality of life for those affected by Charcot-Marie-Tooth.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Charcot-Marie-Tooth Disease

Organizational Contact Information

First Name:

Patricia

Last Name:

Dreibelbis

Address:

2700 Chestnut Street

Chester, PA, 19013

Phone:

+1 610 499 9264

Fax:

+1 810 499 9267

Toll Free Number:

+1 800 606 2682

Email:

cmtassoc@aol.com

Website Address:

http://www.charcot-marie-tooth.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Spanish

Range of services include:

Referrals to local chapter or group

Medical referrals

Genetic information

Telephone helpline

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Journal articles on condition

Research updates

Conferences/workshops for:

Affected individuals and/or families