Printed materials available in:
Information provided for:
Affected individuals
Health care professionals
Families of affected individuals
The public
Teachers
Legislators
Media
Other
Range of services include:
Referrals to local chapter or group
Medical referrals
Other
Telephone helpline
Other
Educational materials include:
Fact sheet(s)
Journal
Lending library
Resource guide
Website
Other
Conferences/workshops for:
Affected individuals and/or families
Public
Researchers
Professionals
Other
Financial assistance for: