Centronuclear Myopathy Project

General Organizational Information
Organization Name: 
Centronuclear Myopathy Project
Year Established: 
2009
Mission Statement: 
The Centronuclear Myopathy Project is making a worldwide difference in Centronuclear Myopathy by: collaborating with other organizations, raising awareness, providing education, and supporting research.
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Centronuclear Myopathy
Organizational Contact Information
First Name: 
Sarah
Last Name: 
Foye
Address: 
38 Buckingham Circle
Pine Brook, NJ, 07058
Phone: 
+1 973 882 1996
Email: 
foyesarah@gmail.com
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Media
Students
Researchers
Other
Range of services include: 
Referrals to research studies
Referrals to matching individuals/families
Other
Peer-to-peer counseling
Awareness programs
Other
Educational materials include: 
Newsletter
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org