Cavernoma Alliance UK

General Organizational Information

Organization Name:

Year Established:

2009

Mission Statement:

Our mission is to ensure that everyone with cavernous angiomas and their families have access to clear information which provides information about the illness; To provide information, through our website, about others affected by cavernous angiomas and to provide mutual support; To increase awareness of cavernous angiomas so that those affected by the condition receive understanding and support.

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Angioma

Organizational Contact Information

Title:

Dr.

Degree:

BA (Hons.) MA Ph.D.

First Name:

Ian

Middle Initial:

Last Name:

Stuart

Address:

2 St. Helen's Road

Dorchester, DOR, DT1 1SD

Phone:

+1 44 0 1305 213876

Fax:

+1 44 0 1305 213876

Email:

info@cavernoma.org.uk

Website Address:

http://www.cavernoma.org.uk

Resources and Services Provided

Information provided for:

Affected individuals

Mothers only

Grandparents only

Health care professionals

Care providers

Families of affected individuals

Fathers only

The public

Teachers

Legislators

Parents only

Siblings only

Media

Students

Researchers

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Peer support

Peer-to-peer counseling

E-mail list

Telephone helpline

Genetic information

Chat room

Educational materials include:

Fact sheet(s)

Booklet(s)

Website

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals