Caring Voice Coalition,Inc,

General Organizational Information

Organization Name:

Organization Acronym:

CVC

Year Established:

2009

Mission Statement:

Caring Voice Coalition is dedicated to building relationships with charitable organizations founded to help individuals and families affected by serious chronic disorders and diseases.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Alpha-1-Antitrypsin Deficiency

Organizational Contact Information

Title:

President

First Name:

Pamela

Middle Initial:

Last Name:

Harris

Address:

8249 Meadowbridge Road

Mechanicsville, VA, 23116

Phone:

+1 804 427 6468

Fax:

+1 888 204 1783

Toll Free Number:

+1 888 267 1440

Email:

pharris@caringvoice.org

Website Address:

http://www.caringvoice.org

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Media

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Peer support

Grief counseling

Referrals for non-medical services

Financial referrals

Non-medical services

Peer-to-peer counseling

E-mail list

Telephone helpline

Advocacy

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Financial assistance for:

Medical care