CARES Foundation, Inc.

General Organizational Information
Organization Name: 
CARES Foundation, Inc.
Year Established: 
2009
Type of organization: 
Condition(s)-specific organization
Mission Statement: 
CARES Foundation, Inc. is a 501(c)(3) non-profit membership and advocacy organization committed to improving the lives of families and patients affected by Congenital Adrenal Hyperplasia (CAH) through proactively advancing research for a cure, educating the public and healthcare providers about all forms of CAH, advocating for universal newborn screening, and providing support services and resources vital to the CAH community worldwide.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
Yes
Paid staff?: 
Yes
Board of Directors?: 
Yes
Serves the following conditions
Diseases: 
Congenital Adrenal Hyperplasia
Organizational Contact Information
Title: 
Executive Director
First Name: 
Dina
Last Name: 
Matos
Address: 
2414 Morris Ave Suite 110
Union, NJ, 07083
Phone: 
+1 908 364 0272
Fax: 
+1 908 686 2019
Toll Free Number: 
+1 866 277 3737
Resources and Services Provided
Languages spoken: 
English
Portuguese
Spanish
Printed materials available in: 
English
Spanish
Information provided for: 
Affected individuals
Families of affected individuals
Care providers
Health care professionals
Researchers
The public
Teachers
Students
Media
Legislators
Range of services include: 
Referrals to local chapter or group
Referrals to research studies
Referrals to matching individuals/families
Peer-to-peer counseling
Medical referrals
Genetic information
Referrals for non-medical services
Financial referrals
Political action
Advocacy
Training
Speakers
Pen pal program
Telephone helpline
Educational materials include: 
Fact sheet(s)
Pamphlet(s)
Website
Newsletter
Journal articles on condition
Research updates
Video(s)/Movie(s)
Conferences/workshops for: 
Affected individuals and/or families
Researchers
Professionals
Financial assistance for: 
Medical care
Transportation
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org