Cardiac Arrhythmias Research and Education Foundation, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

C.A.R.E.

Year Established:

1995

Type of organization:

National organization

Mission Statement:

To provide funding for research and to increase professional and public awareness of unexpected sudden cardiac death due to acquired heart disease and inherited rhythm disorders.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Diseases:

Arrhythmogenic Right Ventricular Cardiomyopathy

Organizational Contact Information

Title:

Executive Director

First Name:

Mary Jo

Last Name:

Gordon

Address:

26425 NE Allen Street Suite 103, PO Box 369

Duvall, Washington, 98019

Phone:

+1 425 785 5836

Fax:

+1 425 788 1927

Toll Free Number:

+1 800 404 9500

Email:

care@longqt.org

Website Address:

http://www.longqt.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Peer-to-peer counseling

Medical referrals

Genetic information

Financial referrals

Advocacy

Training

Speakers

Telephone helpline

E-mail list

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Journal articles on condition

Slides

Research updates

Video(s)/Movie(s)

CD Roms

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals