Printed materials available in:
Information provided for:
Affected individuals
Families of affected individuals
Care providers
Health care professionals
Teachers
Range of services include:
Referrals to local chapter or group
Referrals to research studies
Referrals to matching individuals/families
Professional counseling
Peer-to-peer counseling
Medical referrals
Referrals for non-medical services
Advocacy
Telephone helpline
Educational materials include:
Website
Newsletter
Bibliography
Video(s)/Movie(s)
Resource guide
Conferences/workshops for: