Canadian Society for Mucopolysaccharide and Related Diseases Inc.

General Organizational Information

Organization Name:

Organization Acronym:

Canadian MPS Society

Year Established:

1984

Type of organization:

National Condition(s)-specific organization

Mission Statement:

The Canadian MPS Society is committed to providing support to families affected with MPS and related diseases, educating medical professionals and the general public about MPS and related diseases, and raising funds for research so that one day cures can be found for all types of MPS and related diseases.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Diseases:

Mucopolysaccharidosis

Organizational Contact Information

Title:

Executive Director

First Name:

Kirsten

Last Name:

Harkins

Address:

PO Box 30034 RPO Parkgate

North Vancouver, V7H 2Y8

Canada

See map: Google Maps

Phone:

+1 604 924 5130

Fax:

+1 604 924 5131

Toll Free Number:

+1 1 800 667 1846

Email:

kirsten@mpssociety.ca

Website Address:

http://www.mpssociety.ca

Resources and Services Provided

Languages spoken:

English

French

Printed materials available in:

English

French

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Researchers

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Rehabilitation resource referrals

Peer support

Referrals for non-medical services

Financial referrals

Other

Awareness programs

Political action

E-mail list

Telephone helpline

Genetic information

Speakers

Advocacy

Other

Educational materials include:

Fact sheet(s)

Membership directory

Pamphlet(s)

Booklet(s)

Research updates

Newsletter

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Other

Financial assistance for:

Medical care

Transportation

Other