Canadian Fanconi Anemia Research Fund

General Organizational Information

Organization Name:

Organization Acronym:

Fanconi Canada

Year Established:

1994

Mission Statement:

Fanconi Canada is a registered charity that funds research in Canada into an effective treatment and, ultimately, a cure for Fanconi anemia and serves as a support network for affected Canadian families.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Fanconi Anemia

Organizational Contact Information

Title:

Mr.

First Name:

Lorne

Middle Initial:

Last Name:

Shelson

Address:

PO Box 38157

Toronto, M5N3A9

Canada

See map: Google Maps

Phone:

+1 416 489 6393

Fax:

+1 416 489 6393

Email:

admin@fanconicanada.org

Website Address:

http://www.fanconicanada.org/en/

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

French

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Media

Students

Researchers

Other

Range of services include:

Referrals to research studies

Peer support

Other

Peer-to-peer counseling

E-mail list

Other

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Other

Financial assistance for:

Other