Brown-Vialetto-Van Laere International

General Organizational Information
Organization Name: 
Brown-Vialetto-Van Laere International
Organization Acronym: 
BVVL International
Year Established: 
2009
Brochure thumbnail: 
Brochure: 
application/pdf icon
fdhope_broc.pdf
Type of organization: 
Condition(s)-specific organization
Mission Statement: 
BVVL International is the first web-based resource tool where physicians, researchers, and families interested in learning more about Brown-Vialetto-Van Laere syndrome.
Status of organization: 
Unincorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
Yes
Serves the following conditions
Diseases: 
Brown-Vialetto-Van Laere Syndrome
Organizational Contact Information
Title: 
Dr
Degree: 
MD
First Name: 
Brooke
Middle Initial: 
B
Last Name: 
Allen
Address: 
4940 Knox Court
Denver, 80221
Phone: 
+1 601 942 2053
Email: 
info@bvvlinternational.org
Website Address: 
http://www.bvvlinternational.org
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Families of affected individuals
Care providers
Health care professionals
Researchers
The public
Students
Media
Legislators
Range of services include: 
Referrals to research studies
Genetic information
Referrals for non-medical services
Non-medical services
Political action
Advocacy
Educational materials include: 
Website
Research updates
Resource guide
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org