BOKS vzw

General Organizational Information

Organization Name:

BOKS vzw

Branch/Affiliation:

Metabolic Diseases

Year Established:

1994

Type of organization:

National Coalition/umbrella organization

Mission Statement:

Improvement of live quality and quantity for people with metabolic disorders. Give our children more life for their years and more years to live.

Status of organization:

Unincorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Metabolic Diseases

Organizational Contact Information

First Name:

Lut

Last Name:

De Baere

Address:

A. Nahonlaan 7

Melsele, 9120

Belgium

Phone:

+1 3/775 48 39

Fax:

+1 3/775 48 39

Email:

info@boks.be

Website Address:

http://www.boks.be

Resources and Services Provided

Languages spoken:

English

French

German

Information provided for:

Affected individuals

Care providers

Families of affected individuals

The public

Teachers

Media

Students

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Professional counseling

Medical referrals

Peer support

Referrals for non-medical services

Financial referrals

Non-medical services

Crisis intervention

Other

Awareness programs

Political action

Telephone helpline

Speakers

Other

Educational materials include:

Magazine

Video(s)/Movie(s)

Slides

Pamphlet(s)

Booklet(s)

CD Roms

Research updates

Newsletter

Website

Student materials

Other

Conferences/workshops for:

Affected individuals and/or families

Public

Other

Financial assistance for:

Other