Birth Defect Research for Children, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

BDRC

Year Established:

1982

Type of organization:

Condition(s)-specific organization

Mission Statement:

Birth Defect Research for Children provides free information about birth defects and developmental disabilities. We also sponsor a parent matching program and the National Birth Defect Registry, a research project that collects data for studies on causes of birth defects.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Diseases:

Birth Defects

Organizational Contact Information

Title:

Executive Director

First Name:

Betty

Last Name:

Mekdeci

Address:

800 Celebration Ave Suite 225

Orlando, FL, 34747

Phone:

+1 407 566 8304

Fax:

+1 407 566 8341

Email:

staff@birthdefects.org

Website Address:

http://www.birthdefects.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Referrals for non-medical services

Non-medical services

Financial referrals

Advocacy

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Research updates

Video(s)/Movie(s)

CD Roms