Birt-Hogg-Dube Family Alliance

General Organizational Information

Organization Name:

Organization Acronym:

BHD Family Alliance

Year Established:

2009

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Birt-Hogg-Dube (BHD) Family Alliance was formed as a source of information and contacts for those who are affected by or interested in BHD.

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Birt-Hogg-Dube

Organizational Contact Information

First Name:

Cathy

Last Name:

Sherman

Address:

1065 Detwiler Drive

York, PA, 17404

Phone:

+1 717 764 4907

Email:

info@birthoggdube.org

Website Address:

http://www.bhdsyndrome.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

The public

Educational materials include:

Fact sheet(s)

Website

Journal articles on condition