Benign Essential Blepharospasm Research Foundation, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

BEBRF

Year Established:

1981

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Mission of the Benign Essential Blepharospasm Research Foundation, Inc. is to fund and promote medical research in the search for the cause and cure of blepharospasm, Meige, and other related disorders of the facial musculature, to provide support, education and referrals to persons with these disorders, and to disseminate information and serve as an authoritative resource to the medical community and the general public.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Benign Essential Blepharospasm (BEB)

Hemifacial Spasm

Meige Syndrome

Organizational Contact Information

Title:

Office Administrator

First Name:

Mary

Last Name:

Smith

Address:

PO Box 12468

Beaumont, TX, 77726-2468

United States

See map: Google Maps

Phone:

+1 409 832 0788

Fax:

+1 409 832 0890

Email:

bebrf@blepharospasm.org

Website Address:

http://www.blepharospasm.org/

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

French

Italian

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

The public

Media

Range of services include:

Referrals to local chapter or group

Peer-to-peer counseling

Medical referrals

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Newsletter

Video(s)/Movie(s)

Audiotape(s)

Lending library

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Research Management:

Awarding research grants

Providing information about clinical trials

No Revisions:

I have reviewed my listing and there are no updates to be made at this time.