Beckwith-Wiedemann Children's Foundation

General Organizational Information
Organization Name: 
Beckwith-Wiedemann Children's Foundation
Organization Acronym: 
BWCF
Year Established: 
1969
Type of organization: 
International Condition(s)-specific organization
Mission Statement: 
The Beckwith-Wiedemann Children's Foundation is a non-profit organization dedicated to increasing the quality of life for those affected by this rare, 1:14,000 birth disorder.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
First Name: 
Katherine
Last Name: 
Kruger
Address: 
Phone: 
+1 508 994 4839
Email: 
bwcfkathy@comcast.net
Website Address: 
http://www.beckwith-wiedemannsyndrome.org
Resources and Services Provided
Languages spoken: 
Spanish
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
Other
Range of services include: 
Referrals to research studies
Referrals to matching individuals/families
Peer support
Non-medical services
Other
Peer-to-peer counseling
E-mail list
Advocacy
Air transportation
Other
Educational materials include: 
Video(s)/Movie(s)
Pamphlet(s)
Website
Other
Conferences/workshops for: 
Affected individuals and/or families
Researchers
Professionals
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org