Association for Glycogen Storage Disease

General Organizational Information

Organization Name:

Organization Acronym:

AGSD

Year Established:

1979

Type of organization:

Condition(s)-specific organization

Mission Statement:

To help parents and individuals with GSD communicate, share, and provide support to help families, professionals and the public with awareness of GSD.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Organizational Contact Information

Title:

Webmaster

First Name:

Mary

Last Name:

Carpenter

Address:

PO Box 896

Durant, IA, 52747

Phone:

+1 563 514 4022

Fax:

+1 563 785 6038

Email:

maryc@agsdus.org

Website Address:

http://www.agsdus.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Range of services include:

Medical referrals

Financial referrals

Educational materials include:

Pamphlet(s)

Booklet(s)

Newsletter

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Financial assistance for:

Medical care

Transportation

Scholarships