Printed materials available in:
Information provided for:
Affected individuals
Families of affected individuals
Care providers
Health care professionals
Researchers
The public
Teachers
Students
Media
Legislators
Range of services include:
Referrals to local chapter or group
Referrals to research studies
Peer-to-peer counseling
Medical referrals
Referrals for non-medical services
Non-medical services
Financial referrals
Advocacy
E-mail list
Chat room
Educational materials include:
Fact sheet(s)
Pamphlet(s)
Booklet(s)
Website
Newsletter
Journal articles on condition
Research updates