Angelman Syndrome Foundation

General Organizational Information

Organization Name:

Organization Acronym:

ASF

Year Established:

1989

Type of organization:

Condition(s)-specific organization

Mission Statement:

The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman Syndrome through education, information exchange and research.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Title:

Executive Assistant

First Name:

Sheila

Last Name:

Wenger

Address:

4255 Westbrook Drive Suite 219

Aurora, IL, 60504

Phone:

+1 630 978 4245

Fax:

+1 630 978 7408

Toll Free Number:

+1 800 432 6435

Email:

info@angelman.org

Website Address:

http://www.angelman.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Clinical or treatment centers

Genetic information

Referrals for non-medical services

Financial referrals

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Financial assistance for:

Scholarships