Androgen Insensitivity Syndrome Support Group USA

General Organizational Information

Organization Name:

Organization Acronym:

AISSGUSA

Year Established:

1996

Type of organization:

Condition(s)-specific organization

Mission Statement:

We are here to provide support, information and assistance to all who wish to know more about Androgen Insensitivity Syndrome (AIS) and similar conditions.

Status of organization:

Unincorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Androgen Insensitivity Syndrome

Organizational Contact Information

Title:

Medical Advisor and Board Member

Degree:

Dr.

First Name:

Arlene

Middle Initial:

Last Name:

Baratz

Address:

1355 Oakledge Court

Pittsburgh, PA, 15241

Phone:

+1 412 257 0815

Email:

abbaratz@gmail.com

Website Address:

http://www.aissgusa.org

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Peer Support

Peer-to-peer counseling

Help with adoption or placement

Adoption

Medical referrals

Genetic testing

Referrals for non-medical services

Non-medical services

Legal advice

Advocacy

Speakers

E-mail list

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Journal articles on condition

Video(s)/Movie(s)

Resource guide

Conferences/workshops for:

Affected individuals and/or families

Professionals

Financial assistance for:

Scholarships

Research Management:

Linking researchers and families

Participant recruitment