Androgen Insensitivity Syndrome/ Disorders of Sex Development Parents' Group

General Organizational Information
Organization Name: 
Androgen Insensitivity Syndrome/ Disorders of Sex Development Parents' Group
Organization Acronym: 
AIS/DSD Parents' Group
Year Established: 
2009
Type of organization: 
General support or information organization
Mission Statement: 
Our mission is to provide support and education for parents of any child affected by a disorder of sex development
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Ambiguous Genitalia
Organizational Contact Information
Degree: 
MD
First Name: 
Arlene
Middle Initial: 
B
Last Name: 
baratz
Address: 
1355 oakledge court
pittsburgh, 15241
United States
See map: Google Maps
Phone: 
+1 412 257 0815
Email: 
abbaratz@gmail.com
Website Address: 
http://www.aissgusa.org
Resources and Services Provided
Languages spoken: 
Spanish
Chinese
Information provided for: 
Families of affected individuals
The public
Other
Range of services include: 
Referrals to research studies
Referrals to matching individuals/families
Medical referrals
Peer support
Other
Genetic information
Advocacy
Chat room
Other
Educational materials include: 
Journal articles on condition
Pamphlet(s)
Newsletter
Website
Other
Conferences/workshops for: 
Affected individuals and/or families
Other
Financial assistance for: 
Transportation
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org