American Behcet's Disease Association

General Organizational Information

Organization Name:

Organization Acronym:

ABDA

Year Established:

1969

Type of organization:

National organization

Mission Statement:

The American Behcet?s Disease Association?s mission is to provide support and information to people with Behcet?s Disease and their families and to educate the medical community about Behcet?s Disease. Through education, support, research and fund raising, the American Behcet?s disease Association is working to find a cure and to promote awareness and understanding of Behcet?s disease.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Organizational Contact Information

Title:

Executive Vice President, Director of Public Relations

Degree:

First Name:

Therese

Middle Initial:

Last Name:

Feeman

Address:

PO Box 869

Smithtown, NY, 11787-0869

Phone:

+1 631 656 0537

Fax:

+1 480 247 5377

Toll Free Number:

+1 800 723 4238

Email:

info@behcets.com

Website Address:

http://www.behcets.com

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

Spanish

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Media

Researchers

Other

Range of services include:

Medical referrals

Peer support

Referrals for non-medical services

Other

Peer-to-peer counseling

Awareness programs

Political action

E-mail list

Telephone helpline

Clinical or treatment centers

Speakers

Advocacy

Chat room

Other

Educational materials include:

Fact sheet(s)

Membership directory

Booklet(s)

Research updates

Newsletter

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Professionals

Other

Financial assistance for:

Other