American Association for Klinefelter Syndrome Information & Support

General Organizational Information

Organization Name:

Organization Acronym:

AAKSIS

Year Established:

2009

Mission Statement:

The mission of the American Association for Klinefelter Syndrome Information & Support is the education, support, research and understanding of 47XXY and its variants, collectively known as Klinefelter Syndrome.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

First Name:

Roberta

Last Name:

Rappaport

Address:

2945 West Farwell Ave

Chicago, IL, 60645-2925

Toll Free Number:

+1 1 888 466 5747

Email:

AAKSIS@sbcglobal.net

Website Address:

http://www.aaksis.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Families of affected individuals

The public

Teachers

Media

Students

Researchers

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Medical referrals

Peer support

Other

Awareness programs

E-mail list

Telephone helpline

Speakers

Advocacy

Other

Educational materials include:

Pamphlet(s)

Newsletter

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Other

Financial assistance for:

Other