Printed materials available in:
Spanish
English
Chinese
Japanese
Information provided for:
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Media
Researchers
Other
Range of services include:
Referrals to local chapter or group
Peer support
Other
Political action
E-mail list
Telephone helpline
Training
Advocacy
Chat room
Other
Educational materials include:
Fact sheet(s)
Video(s)/Movie(s)
Pamphlet(s)
Journal
Lending library
Booklet(s)
Bibliography
Resource guide
Website
Other
Conferences/workshops for:
Affected individuals and/or families
Researchers
Professionals
Other
Financial assistance for: