Alpha-1 Foundation

General Organizational Information
Organization Name: 
Alpha-1 Foundation
Branch/Affiliation: 
National
Year Established: 
1995
Type of organization: 
National organization
Mission Statement: 
The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
Yes
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Alpha-1-Antitrypsin Deficiency
Organizational Contact Information
First Name: 
Jamie
Last Name: 
Lamson
Address: 
2937 SW 27 Ave Suite 302
Miami, FL, 33133
Phone: 
+1 305 567 9888
Fax: 
+1 305 567 1317
Toll Free Number: 
+1 888 825 7421
Email: 
jlamson@alphaone.org
Website Address: 
http://www.alphaone.org
Resources and Services Provided
Languages spoken: 
English
Spanish
Printed materials available in: 
English
Spanish
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Legislators
Media
Students
Researchers
Range of services include: 
Referrals to research studies
Medical referrals
Rehabilitation resource referrals
Referrals for non-medical services
Awareness programs
Genetic information
Clinical or treatment centers
Advocacy
Educational materials include: 
Fact sheet(s)
Magazine
Journal articles on condition
Pamphlet(s)
Booklet(s)
CD Roms
Research updates
Newsletter
Bibliography
Website
Conferences/workshops for: 
Affected individuals and/or families
Public
Researchers
Professionals
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