Alpha-1 Association

General Organizational Information

Organization Name:

Alpha-1 Association

Year Established:

1991

Mission Statement:

Improving the lives of those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1), a genetic disorder than can cause liver and lung disease in children and adults.

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Alpha-1-Antitrypsin Deficiency

Organizational Contact Information

Title:

Executive Director

First Name:

Marlene

Last Name:

Erven

Address:

2937 SW 27th Avenue Suite 106

Miami, FL, 33133

Phone:

+1 305 648 0088

Fax:

+1 305 648 0089

Toll Free Number:

+1 800 521 3025

Email:

Info@alpha1.org

Website Address:

http://www.alpha1.org

Resources and Services Provided

Range of services include:

Referrals to local chapter or group

Peer support

Telephone helpline

Educational materials include:

Fact sheet(s)

Membership directory

Video(s)/Movie(s)

Pamphlet(s)

Newsletter

Resource guide

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Financial assistance for:

Scholarships