Alpha-1 Advocacy Alliance

General Organizational Information
Organization Acronym: 
A1AA
Year Established: 
2009
Mission Statement: 
The Alpha-1 Advocacy Alliance was formed to build an educational assistance program to meet these quickly expanding needs. We have a passion to serve the under-served populace, educating and empowering them to move in a direction that improves their lives. In addition, these same individuals have much to offer each other and through extended volunteers and compassion, we encourage growth through exchange.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
Yes
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Alpha-1-Antitrypsin Deficiency
Organizational Contact Information
Title: 
Vice Chair
First Name: 
Ann
Last Name: 
Benzinger
Address: 
PO Box 182 103 Rapidan Church Lane
Wolftown, VA, 22748
Phone: 
+1 540 948 6777
Fax: 
+1 540 948 6763
Toll Free Number: 
+1 866 FOR AIAA
Email: 
abenzinger@alpha1advocacy.org
Website Address: 
http://www.alpha1advocacy.org
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Other
Range of services include: 
Referrals to matching individuals/families
Peer support
Other
Peer-to-peer counseling
Awareness programs
Telephone helpline
Advocacy
Other
Educational materials include: 
Journal articles on condition
Pamphlet(s)
Lending library
Research updates
Newsletter
Website
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
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info@geneticalliance.org