Adenoid Cystic Carcinoma Research Foundation

General Organizational Information

Organization Name:

Organization Acronym:

ACCRF

Year Established:

2005

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Adenoid Cystic Carcinoma Research Foundation (ACCRF) supports research into adenoid cystic carcinoma that will accelerate the development of improved therapies and a cure for the disease.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Cancer, Facial

Adenoid Cystic Carcinoma

Organizational Contact Information

Title:

Executive Director

Degree:

MBA, MIA

First Name:

Jeffrey

Middle Initial:

Last Name:

Kaufman

Address:

PO Box 442

Needham, MA, 02494

Phone:

+1 781 248 9699

Email:

info@accrf.org

Website Address:

http://www.accrf.org

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

English

Information provided for:

The public

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Clinical or treatment centers

Advocacy

E-mail list

Educational materials include:

Fact sheet(s)

Website

Newsletter

Research updates

Conferences/workshops for:

Affected individuals and/or families

Researchers