Printed materials available in:
Information provided for:
Affected individuals
Health care professionals
Care providers
Families of affected individuals
Other
Range of services include:
Referrals to local chapter or group
Referrals to matching individuals/families
Other
E-mail list
Chat room
Other
Educational materials include:
Fact sheet(s)
Video(s)/Movie(s)
Journal articles on condition
Pamphlet(s)
Booklet(s)
Newsletter
Audiotape(s)
Website
Other
Conferences/workshops for:
Affected individuals and/or families
Researchers
Professionals
Other
Financial assistance for: