Acid Maltase Deficiency Association

General Organizational Information

Organization Name:

Organization Acronym:

AMDA

Year Established:

1994

Mission Statement:

The Acid Maltase Deficiency Association, was formed to assist in funding research and to promote public awareness of Acid Maltase Deficiency, also known as Pompe Disease.

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Organizational Contact Information

Title:

Director

First Name:

Tiffany

Last Name:

House

Address:

PO Box 700248

San Antonio, TX, 78270

Phone:

+1 210 494 6144

Fax:

+1 210 490 7161

Email:

utsatiff@aol.com

Website Address:

http://www.amda-pompe.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Researchers

Range of services include:

Referrals to matching individuals/families

Medical referrals

Peer support

Political action

Telephone helpline

Advocacy

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Newsletter

Website

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals