The Aarskog Syndrome Parents Support Group

General Organizational Information
Organization Name: 
The Aarskog Syndrome Parents Support Group
Year Established: 
1993
Type of organization: 
National Condition(s)-specific organization
Mission Statement: 
The Aarskog Syndrome Parents Support Group's mission is to supply all persons affected with Aarskog syndrome with information and support via e-mail or regular mail delivery.
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
Title: 
Director
First Name: 
Shannon
Middle Initial: 
F
Last Name: 
Caranci
Address: 
62 Robin Hill Lane
Levittown, 19055-1411
Phone: 
+1 215 943 7131
Email: 
aarskogsyndrome52@msn.com
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Other
Range of services include: 
Peer support
Other
E-mail list
Genetic information
Pen pal program
Advocacy
Other
Educational materials include: 
Fact sheet(s)
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org