Reflex Sympathetic Dystrophy Syndrome Association

General Organizational Information

Organization Name:

Organization Acronym:

RSDSA

Year Established:

1984

Brochure:

Recognizing_Understanding_08.pdf

Type of organization:

Condition(s)-specific National

Mission Statement:

Our mission is to promote greater awareness and earlier recognition of Complex Regional Pain Syndrome (CRPS), funding critical research, and providing support to people with CRPS and their loved ones.

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Prefix:

Mr.

Title:

Executive Director

Degree:

MSW

First Name:

James

Middle Initial:

Last Name:

Broatch

Address:

99 Cherry Street

Milford, CT, 06460

United States

See map: Google Maps

Phone:

+1 203 877 3790

Fax:

+1 203 882 8362

Toll Free Number:

+1 877 662 7737

Email:

info@rsds.org

Website Address:

http://www.rsds.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Range of services include:

Referrals to research studies

Peer Support

Crisis intervention

Medical referrals

Financial referrals

Advocacy

Pen pal program

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Bibliography

Slides

Research updates

CD Roms

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Cohort Development:

Registry of affected individuals

Number of affected individuals registered:

388

Research Management:

Linking researchers and families

Awarding research grants

Providing information about clinical trials

Major research collaborators :

McGill

Major research interests of the organization:

Neuropathic pain, Glia cell activation

Current projects:

http://www.rsds.org/3/research/index.html

Number of grants awarded in last calendar year :

Amount of researching funding awarded in last year :

$85783