5p- Society

General Organizational Information
Organization Name: 
5p- Society
Year Established: 
1989
Mission Statement: 
Our mission is to encourage and facilitate communication among families having child with 5p-syndrome and to spread awareness and education of the syndrome to these families and their service providers.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
Yes
Paid staff?: 
Yes
Board of Directors?: 
Yes
Serves the following conditions
Diseases: 
Chromosome 5p-
Organizational Contact Information
Title: 
Executive Director
First Name: 
Laura
Last Name: 
Castillo
Address: 
PO Box 268
Lakewood, CA, 90714-0268
Phone: 
+1 562 804 4506
Fax: 
+1 562 920 5240
Toll Free Number: 
+1 888 970 0777
Email: 
director@fivepminus.org
Website Address: 
http://www.fivepminus.org
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Media
Students
Researchers
Other
Range of services include: 
Referrals to matching individuals/families
Peer support
Other
E-mail list
Telephone helpline
Speakers
Other
Educational materials include: 
Fact sheet(s)
Membership directory
Journal articles on condition
Pamphlet(s)
Newsletter
Bibliography
Website
Student materials
Other
Conferences/workshops for: 
Affected individuals and/or families
Public
Researchers
Professionals
Other
Financial assistance for: 
Scholarships
Other
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