22q Central

General Organizational Information
Organization Name: 
22q Central
Year Established: 
2010
Type of organization: 
Condition(s)-specific International
Mission Statement: 
22q Central is a worldwide community directory, promoting awareness and education regarding a common, yet many times overlooked, genetic disorder known as 22q11.2 Deletion Disorder, DiGeorge Syndrome, VCFS (velo-cardio-facial syndrome) and others. Parents, caregivers, and extended family of those with VCFS face difficult challenges that require practical solutions, and that is exactly what you'll find here. We hope that you'll join the many voices of experience that speak here, and that you'll share in reaching out to others with your own unique perspective. We offer you a welcoming, safe and comfortable place to interact with other parents and professionals, and an opportunity to learn, share and get involved.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
Yes
Paid staff?: 
No
Board of Directors?: 
Yes
Serves the following conditions
Diseases: 
Chromosome 22q
Organizational Contact Information
Degree: 
Nursing
First Name: 
Sherry
Last Name: 
Gomez
Address: 
4918 W. Phelps Rd
Glendale, AZ, 85306
United States
See map: Google Maps
Phone: 
+1 602 789 6416
Fax: 
+1 602 789 6416
Email: 
22q11@cox.net
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Families of affected individuals
Care providers
Health care professionals
Researchers
The public
Teachers
Students
Media
Legislators
Range of services include: 
Referrals to local chapter or group
Referrals to matching individuals/families
Peer Support
Peer-to-peer counseling
Crisis intervention
Grief counseling
Genetic information
Awareness Programs
Advocacy
Speakers
Pen pal program
Telephone helpline
Educational materials include: 
Fact sheet(s)
Website
Journal articles on condition
Research updates
Video(s)/Movie(s)
Resource guide
Conferences/workshops for: 
Affected individuals and/or families
Professionals
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org