22q and You Center

General Organizational Information
Year Established: 
1992
Mission Statement: 
At The "22q and You" Center -- established in 1996 -- our goal is to provide the finest diagnosis, treatment and follow-up services to these children and their families. We also continue to lead the way in researching 22q11.2 deletion, hoping to find out more about what causes it, how it affects children and how we can make their lives even better.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
Title: 
Associate Director
First Name: 
Donna
Last Name: 
McDonald-McGinn
Address: 
Clinical Genetics Center 34th Street & Civic Center Boulevard
Philadelphia, PA, 19104
Phone: 
+1 215 590 2920
Fax: 
+1 215 590 3298
Email: 
genetics@email.chop.edu
Website Address: 
http://genetics.chop.edu/22q
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Other
Range of services include: 
Referrals to local chapter or group
Professional counseling
Medical referrals
Referrals for non-medical services
Other
Genetic testing
Other
Educational materials include: 
Fact sheet(s)
Video(s)/Movie(s)
Booklet(s)
Research updates
Newsletter
Website
Other
Conferences/workshops for: 
Affected individuals and/or families
Public
Researchers
Professionals
Other
Financial assistance for: 
Medical care
Transportation
Other
Research activities include: 
Registry of affected individuals
Linking researchers and families
Initiating and conducting research
  • share
Developed by Accella
Graphic Design by
Melissa Allen Design
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org