National Spasmodic Dysphonia Association

General Organizational Information

Organization Name:

Organization Acronym:

NSDA

Year Established:

1989

Type of organization:

Condition(s)-specific organization

Mission Statement:

The mission of the National Spasmodic Dysphonia Association is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Dystonia

Spasmodic dysphonia

Organizational Contact Information

Prefix:

Ms.

Title:

Executive Director

First Name:

Kimberly

Middle Initial:

Last Name:

Kuman

Address:

300 Park Boulevard Suite 301

Itasca, IL, 60143

United States

See map: Google Maps

Phone:

+1 630 250 4504

Fax:

+1 630 250 4505

Toll Free Number:

+1 800 795 6732

Email:

NSDA@dysphonia.org

Website Address:

http://www.dysphonia.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Peer Support

Medical referrals

Non-medical services

Awareness Programs

Advocacy

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Research updates

Video(s)/Movie(s)

Student materials

Conferences/workshops for:

Affected individuals and/or families

Number of grants awarded in last calendar year :

Amount of researching funding awarded in last year :

$11000

Amount of funding allocated to drug development: