Transverse Myelitis Association

General Organizational Information

Organization Name:

Organization Acronym:

TMA

Year Established:

1994

Type of organization:

Condition(s)-specific International

Mission Statement:

The Transverse Myelitis Association provides educational information, advocates for and supports research efforts for a spectrum of rare neuroimmunologic diseases of the central nervous system, which include: Transverse myelitis, Acute Disseminated Encephalomyelitis (ADEM), Optic Neuritis, and Neuromyelitis Optica (Devic's disease).

Status of organization:

Unincorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Transverse myelitis

Neuromyelitis Optica

Acute Disseminated Encephalomyelitis

Optic neuritis

Organizational Contact Information

Prefix:

Title:

President

Degree:

Ph.D.

First Name:

Sanford

Middle Initial:

Last Name:

Siegel

Address:

1787 Sutter Parkway

Powell, OH, 43065-8806

United States

See map: Google Maps

Phone:

+1 614 766 1806

Email:

ssiegel@myelitis.org

Website Address:

http://www.myelitis.org/

Resources and Services Provided

Languages spoken:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Range of services include:

Referrals to research studies

Peer Support

Medical referrals

Awareness Programs

Chat room

Summer Camp

Educational materials include:

Website

Newsletter

Journal articles on condition

Video(s)/Movie(s)

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals