Caring for Carcinoid Foundation

General Organizational Information

Organization Name:

Organization Acronym:

CFCF

Year Established:

2005

Brochure:

Neuroendocrine Tumors-1.pdf

Type of organization:

Condition(s)-specific organization

Mission Statement:

The mission of the Caring for Carcinoid Foundation (CFCF) is to discover a cure for carcinoid cancer and related neuroendocrine tumors. CFCF also works to eliminate the suffering of patients, families, and caregivers affected by neuroendocrine tumors.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Carcinoid Tumor

Neuroendocrine Tumor

Organizational Contact Information

Title:

Executive Director

First Name:

Laruen

Middle Initial:

Last Name:

Erb

Address:

198 Tremont Street Box 456

Boston, MA, 02116

United States

See map: Google Maps

Phone:

+1 617 848 3977

Email:

info@caringforcarcinoid.org

Website Address:

http://www.caringforcarcinoid.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Peer Support

Non-medical services

Awareness Programs

Advocacy

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Journal articles on condition

Journal

Research updates

Video(s)/Movie(s)

CD Roms

Student materials

Conferences/workshops for:

Affected individuals and/or families

Researchers

Financial assistance for:

Organizational

Cohort Development:

Blood and Tissue Banking

Research Management:

Participant recruitment

Awarding research grants

Providing information about clinical trials

Major research interests of the organization:

Carcinoid cancer and related neuroendocrine tumors

Current projects:

Ileal Carcinoid Genome Project, Pancreatic Neuroendocrine Genome Project, Neuroendocrine Tumor Bioconsortium, Mouse Models, Cell lines

Number of grants awarded in last calendar year :

Amount of researching funding awarded in last year :

$1000000