International Essential Tremor Foundation

General Organizational Information

Organization Name:

Organization Acronym:

IETF

Year Established:

1992

Type of organization:

Condition(s)-specific International

Mission Statement:

The International Essential Tremor Foundation is a worldwide organization providing global educational information, services and support to those affected by essential tremor (ET) and health care providers while promoting and funding ET research.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Tremor hereditary essential, 1

Tremor hereditary essential, 2

Tremor

Benign Essential Tremor Syndrome

Benign Tremor

Organizational Contact Information

Title:

Executive Director

Degree:

MNM

First Name:

Catherine

Middle Initial:

Last Name:

Rice

Address:

11111 W 95th St Ste 260

Overland Park, KS, 66214

United States

See map: Google Maps

Phone:

+1 913 341 3880

Fax:

+1 913 341 1296

Toll Free Number:

+1 888 387 3667

Email:

info@essentialtremor.org

Website Address:

http://www.essentialtremor.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

German

French

Portuguese

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Peer Support

Medical referrals

Clinical or treatment centers

Political action

Awareness Programs

Advocacy

Educational materials include:

Fact sheet(s)

Website

Blood and tissue bank location :

United States

See map: Google Maps