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What are natural history studies and why are they important in drug development?

Natural history studies are studies that observe individuals with a certain disease or people who are at high risk of developing the disease. The purpose of natural history studies is to understand and characterize the normal progression of a disease or condition. To learn more about natural history studies and why they are important for drug development, click on the links below.

• WikiGenetics: Characterize Conditions

Testimonials: How we did it

Relevant publications

• NCBI: GeneReviews

Related Tools

• Genetic Alliance: An Interactive Guide to Building Lay Advocacy Groups