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What are data repositories and why are they important in drug development?

Data repositories are information warehouses where large amounts of data from multiple sources are stored. Examples the types of data that can be stored in data repositories include scientific publications, research data, or clinical information. To learn more about data repositories and why they are important for drug development, click on the links below.

• Genetic Alliance: Submitting Information About Variation to Public Databases: An NCBI Perspective

Testimonials: How we did it

• FasterCures: Building a Thriving Online Research Community

Relevant publications

• Group Health Research Institute: Glad You Asked: Participants' Opinions of Re-Consent for dbGap Data Submission

Related Tools

Existing Data Repositories

• Genetic Alliance: Disease InfoSearch
• NCBI: PubMed
• NCI OBBR: Biospecimen Research Database
• NCBI: PubChem

Data Repositories with Datasets

• NIH, NHGRI: The Cancer Genome Atlas Data Portal
• NCBI: The International HapMap
• NCBI: dbGaP
• NCBI: dbSNP
• University of Tokyo and Japan Science and Technology Agency: Japanese SNP Database

Data Repositories with Datasets and Samples

• NIDDK: Data, Biosample, and Genetics Repository
• NHBLI: Biological Specimen and Data Repository Coordinating Center
• The Jackson Laboratory: Mouse Genome Informatics