Genetic Alliance Newborn Screening Resources
Government and Committee
- Click here to read about the Centers for Disease Control and Prevention’s Newborn Screening Quality Assurance Program (NSQAP). NSQAP helps state health departments and their laboratories maintain and enhance the quality of test results. It is the only comprehensive source of essential quality assurance services for dried-blood-spot testing for more than 29 years.
- Click here to read about updates on the activities of the ACHDNC. The committee advises the Secretary of the U.S. Department of Health and Human Services regarding the most appropriate application of universal newborn screening tests, technologies, policies, guidelines, and standards for effectively reducing morbidity and mortality in newborns and children having, or at risk for, heritable disorders.
- Click here to read about the activities of the NICHD. The institute conducts and supports research on topics related to the health of children, adults, families, and populations. The NICHD is an advocate of newborn screening.
Professional and Advocacy
March of Dimes
American College of Medical Genetics – Act Sheets and Confirmatory Algorithms
National Newborn Screening and Genetics Resources Center
Organization Members of the Consumer Taskforce on Newborn Screening