Government and Committee

Centers for Disease Control and Prevention – Quality Assurance and Proficiency Testing for Newborn Screening

• Click here to read about the Centers for Disease Control and Prevention’s Newborn Screening Quality Assurance Program (NSQAP). NSQAP helps state health departments and their laboratories maintain and enhance the quality of test results. It is the only comprehensive source of essential quality assurance services for dried-blood-spot testing for more than 29 years.

Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC)

• Click here to read about updates on the activities of the ACHDNC. The committee advises the Secretary of the U.S. Department of Health and Human Services regarding the most appropriate application of universal newborn screening tests, technologies, policies, guidelines, and standards for effectively reducing morbidity and mortality in newborns and children having, or at risk for, heritable disorders.

National Institute of Child Health and Human Development (NICHD)

• Click here to read about the activities of the NICHD. The institute conducts and supports research on topics related to the health of children, adults, families, and populations. The NICHD is an advocate of newborn screening.

Professional and Advocacy

March of Dimes
American College of Medical Genetics – Act Sheets and Confirmatory Algorithms
National Newborn Screening and Genetics Resources Center

Organization Members of the Consumer Taskforce on Newborn Screening

CARES Foundation
Children’s Sickle Cell Foundation
Citizens for Quality Sickle Cell Care Foundation
Hunter’s Hope Foundation
Save Babies through Screening Foundation