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Advocates
This listserv is targeted for leaders of disease-specific organizations and their active members. Messages distributed through this list include information about events of interest, relevant legislative efforts, and weekly tips.
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BioBank Discussion Forum
This listserv has been created to discuss issues surrounding registries and biorepositories, including weekly tips developed for advocates creating or cultivating a registry or biobank.
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| Community Discussion Forum
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General Genetic Alliance Announcements
Periodically, Genetic Alliance will alert you to important action items, announcements, and deadlines, including Genetic Alliance-specific material as well as information from the genetics, health, and advocacy communities. This listserv includes the Advocacy in Genetics newsletter, which is distributed a few times a year with updates on Genetic Alliance activities.
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Newborn Screening Newsletter
This quarterly newsletter provides updates on the advancement of Genetic Alliance newborn screening initiatives, current newborn screening news, and new opportunities to engage in newborn screening dialogues on a community, state, and national level.
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Registry and Biorepository Bulletin
Genetic Alliance BioBank sends a monthly update to keep you informed of developments in the field of registries and biorepositories. This newsletter highlights relevant funding announcements, training opportunities, scientific meetings, and recent updates from the literature.
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Weekly Bulletin
This weekly update to our Announcements listserv features news about upcoming events, spotlights organizations, and highlights legislation before Congress.
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Weekly Policy Bulletin
Genetic Alliance participates in international, federal, and regional policy news and utilizes our rich network of thousands of organizations to provide you with the most up-to-date information on genetics and health public policy. The Weekly Policy Bulletin puts legislative updates, Congressional and regulatory agency activity, newly released publications and reports, and opportunities for engagement in the policymaking process at your fingertips.
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