This listserv is targeted for leaders of disease-specific organizations and their active members. Messages distributed through this list include information about events of interest, relevant legislative efforts, and weekly tips.
hide
This listserv has been created to discuss issues surrounding registries and biorepositories, including weekly tips developed for advocates creating or cultivating a registry or biobank.
Being a part of the Genetic Alliance network gives you access to valuable online meeting spaces that provide an opportunity to discuss as a virtual community.